Large sets of quantitative data are irreplacable resources in medicine and public health. But there are many important questions large data sets weren’t designed to answer, questions where on-the-ground research is needed. In this episode, I sample some crucial contributions ethnography has made to what we know about the influence of context on thinking, communication, […]
Patient Education
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Watch now: New play and documentary about rare diseases
An exciting new play and documentary about rare diseases, told from the perspectives of patients and their families, is now available to the public. “RARE: Stories of Dis-ease” is a play about the often-hidden experiences of people with rare diseases. The play’s last performance by the Sod House Theater production company was filmed and is […]
25 ways to elicit important patient information
A Family Practice Physician recently spoke to a group I was in. He underscored the importance of follow-up questions, even when they seem irrelevant or off-topic. The example he used was asking a patient, “Do you smoke?” If their answer is “no,” there’s danger in your briskly moving on to the next issue. He said […]
Episode 138 Dr. Paul Ranelli and using the arts to explore rare diseases
It’s a paradox that rare diseases are not so rare; one in ten people has a rare disease. Yet each rare disease, and each person’s experience with a rare disease, is different. This makes for complex communication with family and health professionals. Hear how Dr. Paul Ranelli uses the arts to delve into the complexities […]
Episode 132 Why we should take seriously the differences between “pee-pee” and “urine”
No, really. There are important differences between the terms “pee-pee” and “urine.” Here’s what they are, and why anyone who cares about patient communication and education should take these differences seriously. Listen here and read the transcript below. EPISODE TRANSCRIPT Aww shucks. It’s happened. I got COVID. And the timing! Last episode we made our […]